Health Data

Second time’s not the charm: Health Data Management Policy misses the mark again

IFF wrote to the National Health Authority (NHA) as part of the consultation conducted for the Ayushman Bharat Digital Mission’s Draft Health Data Management Policy (“Draft policy"). Through our comments, we highlight legal, socio-economic and implementation issues.

IFF submits its comments on the Draft Health Data Retention Policy

IFF has provided our comments on the Consultation Paper on Proposed Health Data Retention Policy. In our comments, we have tried to highlight the harms of mandatory data retention, issues around a fragmented healthcare regime and data portability issues.

Read our Joint Letter with C-Help & FMES to NHA on CoWIN’s updated API #SaveOurPrivacy

We wrote to the National Health Authority with C-Help & FMES on their updated API which would allow government and private entities to know the vaccination status of individuals.

IFF's recommendations for the United Health Interface

IFF has submitted its comments on the NDHM’s consultation paper on the Unified Health Interface.Our comments are focused on five key issues: the need for diverse feedback, market capture by the private sector, digital exclusion, financial exploitation, and the need for public digital infrastructure.

Analysing the NDHM’s Health Data Management Policy: Part 2

Along with the Centre for Health Equity, Law, and Policy, we have drafted a working paper analysing the NDHM's Health Data Management Policy. Here, we look at issues of consent and confidentiality, data privacy and security, exclusion, and private sector access to health data.

Analysing the NDHM’s Health Data Management Policy: Part 1

We have drafted a working paper on the National Digital Health Mission’s Health Data Management Policy with the Centre for Health Equity, Law, and Policy. This post is part 1 of our analysis.

Delhi Government’s gag order on information on mucormycosis

Recently, the Delhi Government issued a notification prohibiting anyone from sharing any information on mucormycosis without the prior permission of the Government. IFF has sent the Government a legal notice urging it to rescind this overbroad order.

Joint Statement: Ensure equitable access to COVID-19 vaccines and health care resources

India is in a crisis. As people across the country battle the second wave of COVID-19, ensuring equitable, fast and easy access to healthcare, medicines and the vaccines is critical. The undersigned organizations and persons call on the Central Government, State Governments, Health Secretaries of the Union and the States,

Move fast, break things? Not when sensitive health data is at stake! #SaveOurPrivacy

We wrote to the National Health Authority seeking enactment of general and sectoral data protection laws and meaningful public consultation prior to deployment of any national digital health ID programme.

National Digital Health Mission Data Policy Consultation: Not now, not like this, not without all of us! #SaveOurPrivacy

Post Delhi HC hearing, a follow up representation was sent by the petitioner highlighting continuing violation of statutory obligations and urging the government to re-calculate deadline for submission of feedback after implementing recommended changes.